The patient’s view

Posted by: on Apr 29, 2016 | No Comments

I have just travelled back from Diaverum’s annual meeting. This year the meeting took place in Cascais (Portugal), where over 200 managers met to learn and share experience from colleagues representing our 20 countries around the world. This year we had the honour to listen to one of our patients from Australia, Greg Collette. With 20 years on dialysis he had a lot of important messages to share with the audience. To regularly listen to our patients is the only way to really improve their quality of life for renal patients. Greg Collette, who also writes his own blog at bigdandme.wordpress.com, and he spoke about what is key for a patient, who is about to choose a kidney centre for his or her treatment. He talked about the importance of feeling safe and comfortable, having flexibility with regards to treatment time (especially for patients who work), good food and the proximity to home. Whilst we should know all this as people working every day with renal patients, it was good to hear it from an experienced patient.

Greg also talked about the need to receive more personalised care and the possibility for patients to play a larger role in their health management.  He is very engaged in supporting other patients and has for example been an active developer of our d.CARE app. One very important comment he made in his talk is the active inclusion of patient representatives in the management team meetings in the countries. I found this an excellent idea and I can only encourage all people working in healthcare to do that on a regular basis: To invite patients to really understand how they think and feel about their disease and their treatment. This is essential to improve their quality of life.

Foto på Dag Andersson